[Insight-users] Fwd: Special Seminar of Interest: Sharing Genomic Data: NIH Data Sharing Policies Past, Present & Future

[Luis Ibanez]

---------- Forwarded message ----------
From: Rossoshek, Anna (NIH/NHGRI) [E] <asirota at mail.nih.gov>
Date: Wed, Apr 13, 2011 at 2:18 PM
Subject: Special Seminar of Interest: Sharing Genomic Data: NIH Data
Sharing Policies Past, Present & Future
To: NHGRIBULLETIN-L at list.nih.gov


iDASH Webinar Series

University of California, San Diego

Sharing Genomics Data: NIH Data Sharing Policies Past, Present, and Future

Laura Rodriguez, Ph.D.

Director for the Office of Policy, Communication, and Education

ABSTRACT:
One of the key tenets of genomics research is rapid and broad access
to basic genomic data.  The National Institutes of Health (NIH) is
similarly committed to open data sharing practices in order to ensure
access to federally-funded data and resources and promote maximum
public benefit through the public's biomedical research investment.
In this webinar, the principles underlying NIH's genomic data sharing
policies will be reviewed and an overview will be provided of the
policy model and expectations for protecting the interests of research
participants whose data is contained within primary genomic datasets.


SPEAKER BIO:
Laura Lyman Rodriguez, Ph.D., is the Director for the Office of
Policy, Communication, and Education and the Senior Advisor to the
Director for Research Policy at the National Human Genome Research
Institute (NHGRI), National Institutes of Health (NIH). Dr. Rodriguez
works to develop and implement policy for research initiatives at the
NHGRI, as well as trans-NIH programs.  She is particularly interested
in the policy and ethics questions related to the inclusion of human
research participants in genomics and genetics research.  Among other
activities, Dr. Rodriguez has provided leadership for many of the
policy development activities pertaining to genomic data sharing and
the creation of the database for Genotypes and Phenotypes (dbGaP) at
the NIH.
Dr. Rodriguez received her bachelor of science with honors in biology
from Washington and Lee University in Virginia and earned a doctorate
in cell biology from Baylor College of Medicine in Texas.

Date and Time

Friday, April 15, 2011

11:00AM-11:50AM (PST)

Access to Webinar

DETAILS ON HOW TO JOIN THE MEETING:

Must use Web and Audio
Please include name and company in registration.
Web: http://www.readytalk.com/ (Join meeting with Access Code 5345825)
Audio: 1-866-740-1260 (Access Code 5345825)

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_______________________________________

Anna Rossoshek, M.S., M.B.A.

Scientific Administrative Analyst

Division of Extramural Research

National Human Genome Research Institute

National Institutes of Health